Well we have become well aquainted this weekend. I signed up for a study nearby my office. Hopefully I will be accepted. it is for a new drug to treat Fibro.. Today is a pretty painful day.. but I am taking it a breath at a time... It is also the start of Rosh Hashanah the jewish new year.. Tonight I will be with family and friends having a wonderful meal at my aunt's house.. and then tommorow I will be at my synagogue and my other aunt's house for a great lunch.. there will be 2 blank spots in my life tonight and tommorow.. my mom and dad.. it will be odd with out either of them tonight or tommorow.. I had gotten used to missing dad during the holidays especially.. and now.. well.. now I have to add my mother to that mix.. oh well.. its not hard.. it is just different.. empty different but different.. no rushing to pick up mom before temple.. no arguing over stupid things.. just this very loud silence.. but it is okay.. It is a new year.. and hopefully a good year .. and hopefully a year that will be devoted to good health and happiness and very little sadness and drama.. I am keeping on.. friends... whatever may be will be and I will just deal with it.. as always thanks for your love and support.. it does see me through... any Fibro advice is much appreciated too.
Love you all
Wish me well
Wish you well too
Not to forget I am going to weigh tonight right after work.. even though I will not be actually meeting with my nutritionist.. I still want to see if I have lost something.. though I doubt it.. my tummy is so sore right now.. but actually feeling a little better.. I hope..
Monday, September 29, 2008
FIBROMYALGIA and Me
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6 comments:
See if there's a warm water therapy/ exercise program anywhere near you. It does WONDERS with fibro!
so sorry you are going through this! sending hugs ;)
Oh Honi, being a long time sufferer of this blind to everyone else disease, I feel for you.
People just do not understand how perfectly normal you can look yet be so incredibly miserable.
I have taken Lyrica in the past and it just made me so foggy.
I woke up this morning with my neck, shoulder and chest flared up and hurting so bad. Not that way when I went to bed but it sure was there when I woke up:(
I do wish you well. May the new year bring you much health and a slimmer silhouette.
Blessings! Happy New Year!
The P<--who has two pals with fibro, and when they can rest and do gentle exercise, it's much improved, but getting that rest is tough without meds, ya know? Sigh.
Take care.
So patients with fibromyalgia appear to have alterations in brain function that goes well beyond pain processing fatigue intense
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